Pissed Me Off, Again

“A right must exist independently of its exercise,” – Rory O’Shea Was Here (2004)

I usually try to be polite and mature in my writings.  I try to be as factual as I can and hopefully eliminate as much of my own bias as possible.  Then there are days like today where I run across a story that just really pisses me off and I need to RANT.  These types of stories are showing up with increasing frequency and they all have a related theme.

12042646_10156796145460571_1826686942731217207_nOver the years I have watched as “words” have been redefined simply by being used out of context.  The context the word usage derived from may have changed altering the understanding of that word.   Definitions from thirty years ago may no longer be valid and yet we continue to build a legislative framework on those words.  I contributed fifty + years of my life to build an inclusive society and I know what the intent of all that work was.  I can no longer sit here like a “politically correct puppy dog” simply because I may benefit from some of these programs while my history is erased.

RANT – A story came to me today about a mother in Smith Falls, Ontario.  She has been tied up in the Human Rights process fighting for the rights of her son with Down Syndrome.  I have included the link to the story but here’s the long and short of it.  Her son is a 52 year old individual who has lived in the community most of his life.  He receives a certain level of support in the community to sustain his independence.

I am guessing mom is in her seventies so not really the stress she needs in her “retirement years” (for the record for some parents of children with disabilities there is no such thing as retirement).  Plus she was absorbing (and she admits a good bit of financial support from friends) that $1500/month additional cost that the government wouldn’t cover.  The governments own standards stated the son could have a home visit from a nurse four (4) times a day but not the fifth time.

To screw around a family for something as simple as the difference of one visit pisses the hell out of me.  A standard needs to be balanced with intent before being denied.  Behind every standard is a “legislative intent“, people tend to forget that.  A standard is simply a way to provide measurement or activity but intent is a way to adjust for circumstances.  Over the years I have watched as “intent” slowly disappears from decision making.  The intent behind home care for independent living is to allow people to stay in their community and that intent should hold some weight when determining needed hours of support.Continue reading “Pissed Me Off, Again”