Category Archives: Disability

Hodge-Podge and Little Things

“Eclectic yet classic with a playful bohemian twist is how I would describe my style” – Alice Temperley    I will borrow Alice’s quote posted above to kick off this little write up.  It’s five o’clock in the morning and I’ve been awake since 4:30.  It is not uncommon for me to wake up once […]
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Chapter 1 – Part 2, The Foundation

Let It Come Lying alone in your solitary bed, The arrival of death you do not dread, You’ve lived a different but confusing life, Accepting pleasure and the occasional strife, And had such joy with your now dead wife. You are alone and feeling ready, Your soul is clean and your mind is steady, You […]
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The Awakening

Alphabet of Despair Abandoned by friends, Abandoned by wife, Abandoned by children, Abandoned by life. Betrayed by his feelings, Betrayed by his drive, Betrayed by his body, Betrayed can’t survive. Captured by torture, Captured by loss, Captured by drugs, Captured by sauce. Destroyed by his blindness, Destroyed by his lust, Destroyed by his ignorance, Destroyed […]
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Memory’s of the Poster Child – Chapter 1

“Knowing yourself is the beginning of all wisdom” – Aristotle We were children.  We weren’t crippled, handicapped or disabled kids, we were children.  Simple as that.  Yes we lived in a hospital (or institution), whatever descriptor you want to use, but we were children first.  We spend the year attending school in the hospital, we […]
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Redefining Social Justice – Part 1 Convergence

“When you are fighting for social justice, one of my biggest pet peeves is speaking out of ignorance” – Eva Longoria  I have spend a life-time as an activist and an advocate for social justice.  In that time I have also worked, maintained a career, raised a family and accomplished all of this with a […]
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The Baron’s of the Badlands

“Loneliness is the poverty of self; solitude is the richness of self” – May Sarton I love good writers, poets and story tellers so to be able to open with a quote by May Sarton (also an outspoken activists on gay rights years before its time) is a good omen.  I can’t take anymore media […]
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Introspection on Perception

Reflection or Refraction I look in the mirror and what do I see, The reflection there, that can’t be me, Others see what they want me to be, From the reflection that’s there I want to flee. Who can say why Anthony Bourdain took his own life when a perceived success was knocking on his […]
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The Winding Road of Life

“Let us never know what old age is.  Let us know the happiness time brings, not count the years” – Ausonius With the exception of some birds twittering outside it is very quiet however it is only 5:30 in the morning and for some reason I am awake.  It’s grey but refreshed.  It rained sometime […]
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Back Home and Back to Basics

History never really says goodbye.  History says “see you later” – Eduardo Galeano Between dealing with the “normal” aging process of a non-conventional body and watching the erosion of disability rights I have been withdrawing into a numbness.  I feel like I have been fumbling around a dark tunnel for the past three years while […]
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What Is Family?

“The bond that links your true family is not one of blood, but of respect and joy in each other’s life” – Richard Bach It is one of those days and the frequency is increasing.  I have been experiencing a new sensation that can best be described as a hive of bee’s crawling over my […]
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