Tag Archives: Disability

Running On Fumes

I have just finished week 7 of the COVID19 life-style and I’m starting to run on fumes. The fight is draining out of me. I feel like I’m trapped on a carousel of an ever changing cycle of Elisabeth Kübler-Ross, five stages of grief. However just as you think you have worked through one, a […]
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The Resurrection of a Memory

Growing up in the Children’s Hospital you really have little control over your day to day life. You learn quickly two things, routine is very structured and your activities are very planned. I knew everyday that a nurse would be there at 8am, noon, 4:30pm and again around 9pm to check temperatures, blood pressure, heart […]
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Activist or Advocate?

Advocacy is often seen as working “within the system” whereas activism is seen as working “outside the system” to generate change. I think this is really useful, as clearly the role or issue can shift from one to the other. – Author unknown I have fifty years experience as an activist with another 25 years of advocacy experience […]
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As Bullying Blossoms to Hate

“I would rather be a little nobody than to be an evil somebody” – Abraham Lincoln At what point do we move from an act of bullying to an act of hate? I would suggest that when we reach that point where malice and violence are a part of the inherent act then we have […]
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Burning Through Tax Dollars

“It is worth our passions as it is with fire and water; they are good servants but bad masters” – Aesop’s Fables 1692 I am really upset with this most recent suggestions from our local government to cut $9 million from our fire departments budget. This is no way to manage a progressive city, public […]
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I will never regret getting older. I know too many people who never had that privilege

Classifications and Coding

I will never regret getting old. I knew too many people who never had the privilege and just as many who never made it out of the Children’s Hospital

Thanksgiving 59 Years Later

“The worst part of holding the memories is not the pain.  It’s the loneliness of it.  Memories need to be shared” – Lois Lowry, The Giver CONFESSIONS – It is challenging to distinguish between a confession and whining however after two weeks of fighting for some hope it is time to lay out a confession.  There couldn’t […]
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No Bulb in the Socket

“Life is to short to drag a trunk of suppressed negative feelings around, dump that crap and travel life’s road with an overnight bag.  The trip is much more enjoyable when not weight down with old baggage.” – Terry Wiens (2018) CONFESSION – ALERT, if course language and angry outbursts affect your sensitivities you should […]
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The “Yes, But” Person

“Compromise is not about losing.  It is about deciding the other person has just as much right to be happy with the end result as you do.” – Donna Martini  I am sitting here engulfed in the fall out of the BC forest fires, thick smoke heavy enough to taste and that’s from five hundred […]
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The Road Forward, The Path Behind

“One can talk good and shower down roses, but it’s the receiver who has to walk through the thorns, and all its false expectations” – Anthony Liccione  I just read an article by a Chris Lenart describing the involvement of fathers in the lives of their disabled child.  I don’t know Chris personally and there is […]
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