Classifications and Coding
I will never regret getting old. I knew too many people who never had the privilege and just as many who never made it out of the Children’s Hospital
Tag Archives: polio
Syphoning Hope
“When I was young my ambition was to be one of the people who made a difference in this world. My hope is to leave the world a little better for having been there” – Jim Henson I think most people are born with a certain amount of hope. I believe I was born with […]
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The Building Blocks of Youth
“To take children seriously is to value them for who they are right now rather than adults-in-the-making.” ~ Alfie Kohn We all like to see our kids enjoying themselves. We all want to protect our kids however there is a big difference between “protecting” and “hiding” them from the realities of the world. Too many […]
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The Road Forward, The Path Behind
“One can talk good and shower down roses, but it’s the receiver who has to walk through the thorns, and all its false expectations” – Anthony Liccione I just read an article by a Chris Lenart describing the involvement of fathers in the lives of their disabled child. I don’t know Chris personally and there is […]
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Hodge-Podge and Little Things
“Eclectic yet classic with a playful bohemian twist is how I would describe my style” – Alice Temperley I will borrow Alice’s quote posted above to kick off this little write up. It’s five o’clock in the morning and I’ve been awake since 4:30. It is not uncommon for me to wake up once […]
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Chapter 1 – Part 2, The Foundation
Let It Come Lying alone in your solitary bed, The arrival of death you do not dread, You’ve lived a different but confusing life, Accepting pleasure and the occasional strife, And had such joy with your now dead wife. You are alone and feeling ready, Your soul is clean and your mind is steady, You […]
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Memory’s of the Poster Child – Chapter 1
“Knowing yourself is the beginning of all wisdom” – Aristotle We were children. We weren’t crippled, handicapped or disabled kids, we were children. Simple as that. Yes we lived in a hospital (or institution), whatever descriptor you want to use, but we were children first. We spend the year attending school in the hospital, we […]
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Redefining Social Justice – Part 1 Convergence
“When you are fighting for social justice, one of my biggest pet peeves is speaking out of ignorance” – Eva Longoria I have spend a life-time as an activist and an advocate for social justice. In that time I have also worked, maintained a career, raised a family and accomplished all of this with a […]
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Back Home and Back to Basics
History never really says goodbye. History says “see you later” – Eduardo Galeano Between dealing with the “normal” aging process of a non-conventional body and watching the erosion of disability rights I have been withdrawing into a numbness. I feel like I have been fumbling around a dark tunnel for the past three years while […]
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What Is Family?
“The bond that links your true family is not one of blood, but of respect and joy in each other’s life” – Richard Bach It is one of those days and the frequency is increasing. I have been experiencing a new sensation that can best be described as a hive of bee’s crawling over my […]
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